This forum, R.E.A.L. - Reborning Expressions and Artful Learning is designed for reborned artists to get together, take classes, learn from each other and chat about reborning!!!
 
HomeHome  PortalPortal  FAQFAQ  RegisterRegister  Log inLog in  

Share
 

 update on Skylar

Go down 
AuthorMessage
DreamWeaver
Toddler
Toddler


Posts : 493
Join date : 2013-03-12

update on Skylar Empty
PostSubject: update on Skylar   update on Skylar EmptySun 24 Nov 2013 - 9:45

Sadly we are still not much further in the quest for skylars diagnosis....but I have found out a few things that we are persuing. Still waiting to see the hematologist...im so tired of waiting! Rheumatology next month and on the search for another neurologist! Her current one is just not taking her case seriously and I don't know why! She even had a bad setback recently, missing several days of school, skin turn yellowish then blown splotches.....and we know she is now having seizures weekly......she cant just take any meds for the seizures due to the possibility that something is going on with her liver. So right now, she is having seizures without any meds to stop them....she has peti mal (absence) seizures. Same seizures she had when she was little. We are looking into something called migralepsy syndrome. This is a neurological disorder that is pretty much epilepsy and migraines combined....one cause the other.  another VERY interesting thing happened yesterday. Sky was in another school play(small part) and I happened to meet a mom who had a child in the play also. Well, we were talking about and she mentioned her son becoming sick in april of this year. As she began to talk about her son and all his symptoms, I nearly hit the floor....It was like she was reading from skylars medical records or her facebook page! A friend was with me and we both looked at eachother and said "SKYLAR" What are the odds that 2 kids have the same symptoms that started about 1 month apart....he is not on the same school campus as skylar(his older sister is) but still.....the odds right??  Well, her son is ALSO seeing the SAME neurologist as skylar and he sent her son to another specialist for further testing.....he was diagnosed with pseudotumor cerebri. So needless to say, I am contacting her neuro and DEMANDING answers as to why he is blowing off skylar yet helping the other child. Then will demand we be sent to the same specialist. The specialist has the capability to do better MRI testing, its a better more thorough machine they have that can see more layers...which is how they saw the scaring on his brain!  
 
Thanks ladies for your continued thoughts and prayers for skylar, it has now been 8 months since she became sick.
 
Oh, here is a quick pic of her from lastnight, this was her serious pose for the camera! LOL
 
update on Skylar 14509310


update on Skylar IMG_3151

Reborns by DreamWeaver
Artist Sarah Beth
Back to top Go down
Jenny In NH
Advanced Walker
Advanced Walker
Jenny In NH

Posts : 3585
Join date : 2012-07-26
Age : 70
Location : NH

update on Skylar Empty
PostSubject: skylar   update on Skylar EmptySun 24 Nov 2013 - 10:26

Thanks for the update Sarah, will continue to pray for Skylar - she is on our list for Saturday prayer group! HUGSSSSSSSSSSSSSSSS prayer prayer prayer 







Hugs,

Jenny

update on Skylar Hattie10



"It's nice to be important, but it's more important to be nice" (words of wisdom from my Dad) :P
Back to top Go down
DreamWeaver
Toddler
Toddler


Posts : 493
Join date : 2013-03-12

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptySun 24 Nov 2013 - 10:48

Thank you Jenny!!!thankyou! 


update on Skylar IMG_3151

Reborns by DreamWeaver
Artist Sarah Beth
Back to top Go down
Jenny In NH
Advanced Walker
Advanced Walker
Jenny In NH

Posts : 3585
Join date : 2012-07-26
Age : 70
Location : NH

update on Skylar Empty
PostSubject: hugs   update on Skylar EmptySun 24 Nov 2013 - 12:30

you are very welcome Sarah!! BIGG GIANT HUGSSSSSSSSSS - take care of yourself, your family needs you to be healthy!







Hugs,

Jenny

update on Skylar Hattie10



"It's nice to be important, but it's more important to be nice" (words of wisdom from my Dad) :P
Back to top Go down
Helennz
Newborn Baby
Newborn Baby


Posts : 40
Join date : 2013-09-20
Age : 61
Location : New Zealand

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptySun 24 Nov 2013 - 23:25

Prayers coming for Skylar

I am not sure if this will help or not, but I have full time care of a multihandicapped girl.
She was born normally, but due to a virus, ended up, part celebal part stroke and empiliptic.
As she can not speak, it is hard to know how she handles meds etc. She is on tegretol for seizures but is still seizuring . I have been using magnesium oil on her and this has helped a lot, also helps relax her muscles and sleeps better.

Hope you get an answer soon!!! Hugs
Back to top Go down
DreamWeaver
Toddler
Toddler


Posts : 493
Join date : 2013-03-12

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptyMon 25 Nov 2013 - 0:01

Magnesium oil.....I will have to look into that! Thank you and prayers to your precious girl!


update on Skylar IMG_3151

Reborns by DreamWeaver
Artist Sarah Beth
Back to top Go down
threads
Advanced Walker
Advanced Walker


Posts : 3316
Join date : 2011-05-11
Age : 75
Location : England

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptyMon 25 Nov 2013 - 5:03

sorry to hear that you are still not further forward, hope you get the treatment
required soon.
Back to top Go down
http://www.threads-for-tiny-tots.webs.com
Orange_Grove_Nursery
Advanced Walker
Advanced Walker
Orange_Grove_Nursery

Posts : 10369
Join date : 2011-05-31
Age : 44
Location : Greenville, Michigan

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptyMon 25 Nov 2013 - 14:49

I sure hope you can find real answers soon. That is awesome though that you found another mom "kindred spirit" who knows what you're going through. Hopefully her experience will help you and Skylar get answers. loveyou! 
Back to top Go down
https://www.etsy.com/shop/orangegrovenursery?ref=hdr_shop_menu
Bornannew
Steady Walker
Steady Walker
Bornannew

Posts : 743
Join date : 2013-09-21
Location : South Carolina

update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar EmptyWed 27 Nov 2013 - 3:18

Thoughts and prayers are coming your way...Blessings for you both. angelsmiley 
Back to top Go down
Sponsored content




update on Skylar Empty
PostSubject: Re: update on Skylar   update on Skylar Empty

Back to top Go down
 
update on Skylar
Back to top 
Page 1 of 1
 Similar topics
-
» Update minus 40kgs in 9mths and loving it!!
» Update- migraines and fainting
» Update: Playing the lottery versus trusting God
» UPDATE on Abbys pups now 7 weeks old
» Dad admitted to hospital ** UPDATE

Permissions in this forum:You cannot reply to topics in this forum
R.E.A.L.. Reborning Expressions & Artful Learning Forum :: Non-Reborn Forums :: Prayer requests-
Jump to: