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 need as many prayers as possible......

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Barb(ozgirl)
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PostSubject: need as many prayers as possible......   Wed 19 Oct 2011 - 7:54

a few of you here are from the other board and know a lil about this issue....but for those that dont know, my two nieces are very ill, they have a disease called hurlers sydrome, its a very rare genetic disorder....karen did the charity baby for my girls....well we were told yesterday that neither is doing very well. the youngest (isabella) is in a comma and on a ventalator....the oldest (makenzie) is just needing oxygen as she cant seem to keep her levels up to where they are supposed to be.....please please keep them both in your prayers....we were told when we found out about there disease that there were no known cases of any child living past 5 with it.....they are 9 and 12 now and have had this terrible thing to deal with since they were babies notfair sad . they are such troopers.....they have been through more in there young lives than most of us as grown adults. but to look at them, you would never know....i mean except of course the obvious, but there spirits are just that of a reg 9 and 12 year old, with the exception the oldest wants to be john sena lol shes my girl, she calls her aunt barb all the time just to tell me she loves me.....im having a really hard time as i always do when they get sick SICK like this....and i would really appreciate all your thoughts and prayers............



Last edited by ozgirl70 on Wed 19 Oct 2011 - 8:00; edited 1 time in total
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babyblossom
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 7:59

It's heartbreaking seeing little kids suffer. sad

Will be praying for you all Barb prayer
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 8:24

That is so heartbreaking! They are in my prayers!!
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LittlePunkins
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 8:27

loveyou!
Bless them.
Praying
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Karen
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 10:06

You know Isabella and Mackenzie are always in my prayers, but I'll vamp them up a bit to make sure God is listening. loveyou! loveyou! loveyou! loveyou!
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handy denise
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 10:21

prayer prayer prayer prayer
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Karin
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 10:53

Those little girls will be in my thoughts and prayers Barb. How very sad that they have to go trough this.

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Barb(ozgirl)
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 11:46

i just spoke with there mom, there is no improvements yet this am....
thank you all so much for thinking and praying for them, they can use all the help they can get right now......
notfair sad
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tonya575
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 12:57

Prayers, prayers and more prayers are going up for all of you!!!!
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Dreaming Angel
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 15:16

awww bless them keeping both in my thoughts and prayers
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Lynknursery
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 19:13

My thoughts are with them, and I can't forget either name, my grand daughters are Isabella and Mackenzie also (cousins though) I hope they pick up soon.


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Poppy
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PostSubject: Re: need as many prayers as possible......   Wed 19 Oct 2011 - 19:14

Praying for them too, it must be sooo heartbreaking to see them like that sad
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PostSubject: Re: need as many prayers as possible......   Thu 20 Oct 2011 - 3:41

Oh Barb, my heart goes out to you all, needless
to say you are in my prayers.
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Barb(ozgirl)
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PostSubject: Re: need as many prayers as possible......   Thu 20 Oct 2011 - 8:20

yanno ive said it before all ill say it again and again and AGAIN you gals are the best bunch of ladies i have EVER came across....anywhere!!!
your power with prayer is also the best!!!
i have GREAT news to report.....my lil brother, the girls dad, just called me, isabella is awake now, responding to the meds, and if she continues to improve they are hoping to remove the vent in the next 24 hours. makenzie is feeling much better and may get to go home this weekend. whoohoo happyhappy
it really gets to me anytime these two get this sick, makenzie has always been auntie barbs fav, and lemme tell you she knows it lol. i missed one bday party of hers, and she was on that cell phone yelling at me.....it didnt matter to her i was out of town it was her bday and i was supposed to be there lol



just thougth id share this pic of my babies....ooopsie, they get so mad at me when i say that....my BIG GIRLS lol with there lil sister kaylee.
kenzie is the one in the middle and bella is the one to the right
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PostSubject: Re: need as many prayers as possible......   Thu 20 Oct 2011 - 8:52

BEAUTIFUL girls!! So glad to hear they are doin better!! happyhappy
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Lara
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PostSubject: Re: need as many prayers as possible......   Thu 20 Oct 2011 - 10:04

Oh, they are beautiful! I will continue to pray that God will work a miracle here. angelsmiley prayer
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Janie/nightngale
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PostSubject: Re: need as many prayers as possible......   Fri 21 Oct 2011 - 16:00

Adding them to my prayer list for continuing improvements, so glad to hear they are better!
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Groovyday
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PostSubject: Re: need as many prayers as possible......   Fri 21 Oct 2011 - 17:20

prayer Praying for your precious nieces and your family. prayer
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PostSubject: Re: need as many prayers as possible......   Sat 22 Oct 2011 - 12:10

Barb... It is so difficult when loved ones are sick. I am glad to see they are doing better, but will be praying. Please keep us updated!
Hugs,
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PostSubject: Re: need as many prayers as possible......   Sun 30 Oct 2011 - 1:49

Beautiful and precious little girls! I will keep them in my prayers. God bless, Dianne prayer
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Barb(ozgirl)
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PostSubject: Re: need as many prayers as possible......   Sun 30 Oct 2011 - 10:15

both girls are home....recovering....and are supposed to return to school on monday bigsmile clapclap weeeeee! happyforyou! hamsterdance dancingelephant:

thankyou! thankyou! thankyou! i simply can NOT thank you all enough for your thoughts and prayers.
loveyou! loveyou!
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CuteAsAPixie
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PostSubject: Re: need as many prayers as possible......   Sun 30 Oct 2011 - 10:19

Barb, that is awesome news!!!!! happyhappy happyhappy happyhappy whoohoo whoohoo whoohoo weeeeee! happyforyou!
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PostSubject: need as many prayers as possible   Sun 30 Oct 2011 - 11:22

Barb I was so sorry to hear about your nieces but was so happy to hear they are home.

All of you will be in my prayers
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PostSubject: Re: need as many prayers as possible......   Sun 30 Oct 2011 - 19:24

whoohoo That's such great news!!!!! happyhappy happyhappy happyhappy happyhappy
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PostSubject: Re: need as many prayers as possible......   Tue 1 Nov 2011 - 20:48

So happy the girls are doing better, Barb. They look like little sweethearts.
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PostSubject: Re: need as many prayers as possible......   Thu 3 Nov 2011 - 19:37

Barb, I am still sending prayers to you and your family glad to hear things are better!!!!
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tanya1975
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PostSubject: Re: need as many prayers as possible......   Thu 3 Nov 2011 - 21:52

Awesome news!!!!!!! happyhappy whoohoo
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PostSubject: Re: need as many prayers as possible......   Thu 3 Nov 2011 - 22:30

Great news!! Thank you for the update!!! whoohoo weeeeee!
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PostSubject: Re: need as many prayers as possible......   Fri 4 Nov 2011 - 1:46

That is wonderful news, that the girls are home and going to return to school on Monday. I will still keep the girls in my prayers!
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PostSubject: Re: need as many prayers as possible......   Fri 4 Nov 2011 - 2:17

Sweetie, I know you don't know me very well....Just know that your sweet little angels are in my prayers. I know it is hard to watch your little ones suffer, but you need to put them in Gods most capable handa, He is the Great Healer, and only he knows whats in store for them. Keep up the great spirits, and we will handle all of the prayers right girls???? angelsmiley loveyou! loveyou! loveyou! loveyou! loveyou! loveyou!




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PostSubject: Re: need as many prayers as possible......   Fri 4 Nov 2011 - 2:19

just saw the rest of the posts...I was so wirred that I didnt continue to read. Thank the Lord that they are home, and doing better, see....I told you that He is the Great Physician.....much luv and hugs to you and your girls :)




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